Sunday, April 22, 2012

Day Twenty Three

Im back in SLC with Kase, it kills me I had to work and not be up here with him. I couldn't hug him enough today!

He feels like crap. Really hot, so wet paper towels on the face makes me feel better, he sleeps like this all day :).

 Took a walk out to the patio with Ash today. Nice fresh air.
Really good to see him out of his bed... its hard for his eyes to adjust to the bright sunlight.
 First time he checked out his stitches.

Wednesday, April 18, 2012

Day Twenty-The bad day

Saturday, March 31st 2012

I get a call from the hospital early on today. It is the PICU nurse, Kase started throwing up blood again, throwing up a lot. She said he was in critical condition they had to give him blood and that they needed permission to operate. They don't know where Kases Dad is.  WHAT? I am sick to my stomach. I don't understand what is going on and why Justin would leave him alone in the hospital. The nurse explains everything again and lets me talk to the Dr. She tells me that they need to get Kase back into the ER right away, that he is not doing good. That they are afraid the artery is bleeding and they can not get it to clot. I give her the OK to operate on Kase, as ask to talk to him. His voice is shaky and I know he is scared. I tell him that it will be OK and that his Dad will be there when he wakes up. Tell him again THIS time they will fix the problem, to not be scared. That I love him. I keep my voice strong so he doesn't sense the fear that is now taking over my thoughts. I ask the Dr to please wait until his Dad is there before they take him back. She tells me again that they need to get him into surgery right now. Just then Justin walks in the room. I get off the phone and call my Mom and cry. Macie hears me and she is sobbing next to me. We are scared and I have no answers. I am emotionally drained, I want him to get better. I want him home. I am so sad for him, it kills me he had to go through all the commotion alone. I feel guilty, hate that I have to work, I want to be there with him.

We find out later they had to give him 4 units of blood, that is half his blood. He was bleeding to death.

They first go in with a scope to make sure that is the source of the bleeding, then they had to make an incision, cut threw his intestines to find the bleed. They stitched the artery closed, his intestine and his stomach back up . It took him longer to come out of surgery this time and he is in pain. He asked if they did the surgery already and if he can have water. Poor kid. I wish he could have water, wish he could eat food. It is pretty much out of it the whole night and net day thanks to his Morphine button. :)


I'm guessing recovery is going to be hard, esp considering he has been in a hospital bed for 3 weeks already and this time he has a 6 inch scare down the middle of his stomach.

I do feel like this time there is actually a solution, its been two weeks of hopelessness, no answers and now there is a direction. I am glad that they were slow to do a surgery but it seems it was almost too safe. I am crossing my fingers this works this time.

Tuesday, April 17, 2012

Happier Days

Being home is hard without him. He is my little Man. He helps take care of everything, reminds me that I am going the wrong way, is there for hugs and to crack me up! I hope he comes home soon. We all miss him!


Day Nineteen

I am in St George for the weekend. There are newborns and families I can put off....and I am running out of money. I hate leaving him at the hospital. It is the worst feeling. I hugged and kissed him so many times he got mad at me :)

He got a sponge bath from his favorite nurse today :) shes pretty awesome...dishes out a lot of sass. That is good for Kase. He needs someone to joke around with.

 More video games today.

It has been nice to come home, to see the other kids, to feel semi normal for a bit. Dad and Penny have been with the kids this week.  Ellen last week, my Mom and Shayla and Bekah in between. Everyone has helped so much more then I ever expected. It has given us time to both be up there helping Kase. When I got home there was a huge poster on the wall and his bed is covered in presents and letters. It made me cry. I hope he comes home soon.

The Moved him up to the Medical floor again. That is a good sign!

Day Eighteen

Thursday March 29th, 2012

The reason I have not had a complete meltdown ....
My sister Ashlie. She brings us food, and brings something fun for Kase EVERY SINGLE DAY.
She rides her bike and takes Trax up to see us EVERYDAY. She has sat and cried along with me and Kase, she has tried to keep Kases spirits up even though everyday he is more weak, more sad, more tired.

No words. I just love her.

Sunday, April 8, 2012

Day Seventeen

Weds March 28th, 2012

Another 6:00 am episode of throwing up blood. I am tired. It seems like he starts to get better and then he's right back to being sick again. Every time it gets worst, his body stresses out more, he loses more blood, gets weaker. I don't really understand why there is not another solution. Why going in and cauterizing the ulcers isn't helping.

They took him back for another surgery around noon. This will be number four or five. I cant even remember now. We are getting desensitised to surgeries and the ICU.



I have some time to goof off and laugh in his bed before they take him back.There is a sweet couple with a newborn baby getting ready for surgery and I immediately feel guilty for being inconsiderate and loud.

 I sit in the waiting room for 45 mins before we hear he is done. They do nothing this time in his stomach even though there is a HUGE hematoma (pretty much a pocket of blood) in his stomach. They feel like it is healing and they don't want to make things worst. Im frustrated.

Kase comes out of the anesthesia OK, Because he has been losing so much blood, they have used something different to put him under and it is scary to watch him wake up, he is so drugged. His eyes roll back in his head, and wont focus on anything. They have him back in a diaper aka the hospital astronaut pants. He is not happy about being in those or being back in the PICU when he wakes up.

Day Sixteen

Tuesday March 27th, 2012
The bribe for sitting in a chair instead of the bed all day long....video games :)